International Crigler-Najjar Associations and Registry
CRIGLER NAJJAR
SYNDROME

 


 
Home

Definition

Treatment

Genetics

The Gunn rat

Bilirubin toxicity

Phototherapy

Crigler-Najjar and pregnancy

Crigler-Najjar type II

Bilirubin Levels & Drugs

International Crigler-Najjar Registry and Associations

Links

News

Album

Updates

Google



Medical Dictionary           



   
Links to several Crigler-Najjar Associations wordwide, to the International Crigler-Najjar Group and to personal webpages of Crigler-Najjar patients.

 

THE CRIGLER NAJJAR ASSOCIATION (USA)
CNA / King’s Way Foundation
c/o Cory Mauck
3134 Bayberry Street
  Witchita, Kansas 67226
e-mail: mauckc@msn.com
   Web Page:
 

 

THE CRIGLER NAJJAR ASSOCIATION (ITALY) 
CI AMI / Crigler-Najjar Italia Associazione Malati Iperbilirubinemici
Via Ivo Peli, 21
40033 Casalecchio di Reno (Bologna) Italy
e-mail: info@ciami.it
   Web Page: http://www.ciami.it

 

 

 

THE CRIGLER NAJJAR ASSOCIATION (FRANCE)
Associacion Française de Crigler-Najjar
8 rue Henri Golaudin
92140 CLAMART (FRANCE)
e-mail: crigler-najjar@9online.fr
   Web Page: http://www.crigler-najjar.fr/

 

 

 

 THE CRIGLER NAJJAR ASSOCIATION (THE NETHERLANDS)

HET NAJJAR FONDS
Het Najjar Fonds Secretariaat: Oranjeweg 34 1241 XS Kortenhoef (NL) tel: 035 - 6564121
e-mail: secretariaat@najjar.nl
   Web Page: http://www.najjar.nl/

 

 

 

THE CRIGLER NAJJAR ASSOCIATION (SPAIN)
AESCN - Asociación Española de Síndrome de Crigler Najjar
C./ Cañada Rosal, 10 B 33519 - Asturias (Asturias)Teléfono: 985 724 832
e-mail: laplazacorreo@yahoo.es
   Web Page: http://www.geocities.ws/sindromecriglernajjar/

 

 

THE CRIGLER-NAJJAR SYNDROME GROUP

List of parents, patients and healthcare providers, sharing common experiences about Crigler-Najjar syndrome type I and II.

GO TO THE CRIGLER-NAJJAR GROUP

 

GO TO THE CRIGLER-NAJJAR GROUP FOR KIDS

 

CRIGLER-NAJJAR on FACEBOOK

 

 

on Twitter

 


THE CRIGLER-NAJJAR SYNDROME NEWSLETTER

Newsletter made by Crigler-Najjar families. It is a way to stay connected with other Crigler-Najjar families. If you would like to receive a copy or send a story about your experience with Crigler-Najjar syndrome, please contact the Hiscock family at the following address:

hiscock@optonline.net

  Click here to see the CNS FAMILY NEWSLETTER
 
 

THE CRIGLER-NAJJAR SYNDROME PHOTO-ALBUM

Visit our photo-album



PERSONAL WEB PAGES:

Gabriella's Crigler-Najjar Page
Personal page of a Crigler-Najjar patient.

The Carmaichel Family Web Page
Contains details on how to build a sit-up light unit for phototherapy.

Bobby, Brooke, Brianna and Brenden Page
A Crigler-Najjar family from Arizona.

Kately's Light.
Personal page of Kately Bachman a Crigler-Najjar patient from Texas.

Association KAMO
Webpage of a French Crigler-Najjar patient.

Numan's blog
Webpage of Crigler-Najjar patient from El Salvador.

Tosif and Madiha Page
How Tosif made a sit up light unit.


                    
PREVIOUS PAGE       NEXT PAGE












Feedback Form



Google
 
Search on the Web Search on Crigler-Najjar Altervista site only
Search on Crigler-Najjar.info site only Search Crigler-Najjar.com site only



Support French CN association while searching the web




GoodSearch logo
Raise pennies for charities of your choice including American Liver Foundation, National Organization for Rare Disorders and many more when you search the Internet with Yahoo!.