CRIGLER-NAJJAR
SYNDROME


 

 
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Definition

Treatment

Genetics

The Gunn rat

Bilirubin toxicity

Phototherapy

Crigler-Najjar and pregnancy

Crigler-Najjar type II

Bilirubin Levels & Drugs

International Crigler-Najjar Registry and Associations

Links

News

Album

Updates



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Medical Dictionary           
Please refer also to the following links:
CriglerNajjar.com Web pages
Crigler-Najjar.info Web pages
Crigler-Najjar.com Web pages (pdf version)
Other useful links:
OMIN
Clinical description of the Crigler-Najjar syndrome from the Online Mendelian Inheritance in Man database.
NORD
Clinical description of the Crigler-Najjar syndrome from the National Organization for Rare Disorders, Inc. database.
Orphanet
Clinical description of the Crigler-Najjar syndrome from the Orphanet.
Wikipedia, The Free encyclopedia
Crigler-Najjar syndrome from Wikipedia.
Yahoo.health
Clinical description of the Crigler-Najjar syndrome from the database of Adam.com. Yahoo.health.
Dr. Namita Roy-Chowdhury
Home page of Dr. N. Roy-Chowdhury professor at the Albert Einstein College of  Medicine of Yeshiva University, Bronx, NY involved in Crigler-Najjar research.
The Human Gene Mutation Database
Mutations in Crigler-Najjar syndrome patients.
B-UDPGT, UGT1A1
Human UDP-glucuronosyltransferase from the OMIN database.
Online Medical Dictionary
Medical dictionary.
Glossary of Genetic Terms
Glossary of genetic terms from the NIH site.
Cholestyramine
Information on cholestyramine from MedlinePlus site
Download Acrobat file data sheet of Questran.
More Liver Links


Foundations:
American Liver Foundation
Children's Liver Disease Foundation
Australian Liver Foundation
Parents of infants and children with kernicterus - P.I.C.K.
Children's Liver Association for Support Services - C.L.A.S.S.
Genetic Alliance
The Clinic for Special Children
CI AMI Italian Crigler-Najjar Association
Personal Web Pages:
Gabriella's Crigler-Najjar Page
Personal page of a Crigler-Najjar patient.
My son suffers from Crigler-Najjar syndrome
Family webpage of a Crigler-Najjar patient from South Australia.
Elias's Crigler-Najjar Page
Personal page of a Crigler-Najjar patient from Spain.
The Carmaichel Family Web Page
Contains details on how to build a sit-up light unit for phototherapy.
Bobby, Brooke, Brianna and Brenden Page
Personal page of Crigler-Najjar parents from Arizona.
Kately's Light
Personal page of Kately Bachman a Crigler-Najjar patient from Texas.
Tosif and Madiha Page
How Tosif made a sit up light unit.
Commercial sites:
Harlan
Harlan, supplier of research animal models including Gunn rats.
Philips
Philips website, the manufacturer of Philips F20, F40 Special Blue lamps and Philips TL 52 lamps used for phototherapy.
Guerra Lamps
Home page of Lampade Guerra where is possible to order online F20T12/BB lamps.
GoldenLite
Ilkley Gazette: Info about GoldenLite, a sunbed manufacturer which developed a sunbed for Crigler-Najjar patients.
Ohmeda Medical
Phototherapy products.
BoliBottom
Light permeable phototherapy diapers.
Neon Elite Pittem
Tubular lamps for phototherapy. Solar Light Co. Inc
Bilirubin phototherapy detector.
Laboratories specialized in the diagnosis of Crigler-Najjar syndrome:
To find diagnostic laboratories consult the sites:
- Orpha.net: list of labs in different European countries
- European Directory of DNA diagnostic Laboratories
- EuroGentest
- Gentests
- NHLS, Molecular & Diagnostic Lab, Cape Town, South Africa.
- BURC, Genetic Diagnostic Center, Istanbul, Turkey.
- Sir Ganga Ram Hospital, New Delhi, India.
- Clinic for Special Children, Strasburg, PA.


In other languages:
Het Najjar Fonds
Dutch Crigler-Najjar association
CISMeF
Clinical description of the Crigler-Najjar syndrome from the database of CISMeF, in French
Orphanet
Clinical description of the Crigler-Najjar syndrome from the database of Orphanet, in French , Italian , Spanish , Portuguese , German .
Maladie de Gilbert et maladie de Crigler-Najjar
Gilbert e Crigler-Najjar syndromes, in French
Pathophysiologie Skriptum Bilirubinstoffwechselatofisiologia
Pathophysiology of bilirubin metabolism, in German
Wikipedia in German
Crigler-Najjar syndrom Wikipedia
Wikipedia in Spanish
Sindrome de Crigler-Najjar Wikipedia
Síndrome de Crigler-Najjar: diagnóstico y tratamiento
Paper in Spanish from Anales de Pediatria Hiperbilirrubinemia no Hemolitica Congenita
Paper in Spanish from Revista Chilena de Pediatria
Crigler-Najjar Sendromu
Turkish site
Crigler-Najjar
This site in Italian



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